Patient Information
Books, booklets, pamphlets available for loan and reference in the library and displayed around the Hospice
General Information and Support
Information for young people re:cancer
http://www.whybother.org.uk
Information re:testicular cancer
http://www.orchid-cancer.org.uk
Patient UK
http://www.patient.co.uk
Directory of UK websites that provide information on health and diseases plus information on self-help and support groups. Also covers bereavement. Edited by two GP's.
PIES
http://www.piesforcancer.info/splash.asp
Personalised information education support for cancer patient and carers.
Macmillan Cancer Relief
http://www.macmillan.org.uk/cancertalk/index.html
This website has been created by Macmillan Cancer Relief to help teachers and youth workers discuss cancer with young people. It provides information and support for talking about cancer in class and powerful case studies from people who have been affected by cancer.
NHS Direct Online
http://www.nhsdirect.nhs.uk
Accredited for patients and the public.
National Library for Health
http://www.library.nhs.uk/Default.aspx
National Web based information resource for the NHS and the UK public. As it develops NeLH will provide access to a range of high quality information resources to support better patient care.
Royal Marsden Hospital
http://www.royalmarsden.nhs.uk/rmh
The Royal Marsden's Patient Information Service covers a broad range of cancers and is affiliated to the Institute of Cancer Research.
Essex Online Partnership
http://www.essexonline.gov.uk
The SEAMLESS system is a web-based, interactive, citizens' information service for the people of Essex. It focuses on public information - information produced by government agencies at all levels, public sector organisations, voluntary and community groups, and commercial organisations. Public information is useful to citizens as part of their everyday lives or in their participation in governance and policy formulation.
Specific Information and Support
Alzheimers Disease Society
http://www.alzheimers.org.uk
Gordon House
10 Greencoat Place
London SW1 1PH
Helpline:- 0845 3000336
Telephone:- 0207 3060606
Local:- St. Albrights
1 London Road
Stanway
Colchester
Essex CO3 5NS
Telephone:- 01206 573708
enquiries@alzheimers.org.uk
Help, information, advice and support to those suffering from dementia and their carers.
Headway Essex
(Brain Injury Advisory Service)
http://www.headwayessex.org.uk
Headway House
58b Head Street
Colchester CO1 1PB
Telephone:- 01206 768797
Fax:- 01206 547486
bias@headwayessex.org.uk
National web site: http://www.headway.org.uk
Providing brain injury care and support. To promote understanding of all aspects of brain injury and to provide information, support and services to people with acquired brain injury, their families and carers in Essex
Breast Cancer Care
http://www.breastcancercare.org.uk/content.php
Kiln House
210 New King's Road
London SW6 4NZ
Tel: 0207 3842984 Helpline 0800 800 6000
Fax:- 0207 3842984
info@breastcancercare.org.uk
Provides free help, information and support to women and men with breast cancer or other breast-related problems as well as to their families, partners and friends.
Cancer Index
http://www.cancerindex.org
A very comprehensive site with a vast range of information on different cancers and links to other sources of information.
Cancer Research UK
http://www.cancerresearchuk.org
P.O. Box 123
Lincoln's Inn Fields
London WC2A 3PX
Telephone:- 0207 2420200
Provides written information on cancer in the form of factsheets and brochures. Also funds research into various types of cancer.
Macmillan Cancer Support
http://www.macmillan.org.uk
89 Albert Embankment,
London SE1 7UQ
Tel: 0207 8407840
Fax: 0207 8407841
Infoline:- 0808 8082020
They have produced a very useful booklet "The Cancer Guide". This is designed to help you find your way through the new situation you find yourself in. It lists most of the national organisations as well as containing information about cancer, treatments, etc. Cancerlink is now merged with this site.
Marie Curie Cancer Care
http://www.mariecurie.org.uk
89 Albert Embankment
Vauxhall
London SE1 7TP
Telephone:- 0207 599777
info@mariecurie.org.uk
Provides 11 inpatient centres in the UK, over 6000Marie Curie nurses to care for people in their own homes throughout the day or night, a Research Institute and an Education Service for health professionals involved in cancer and palliative care. Admission to the centres is via GP or Consultant referral through the appropriate Centre Director. Marie Curie Nurses providing practical nursing care at home are available in most Health Authorities. The service is free of charge to the patient and family.
Tenovus Cancer Information Centre
http://www.tenovus.com
43 The Parade
Cardiff CF24 3AB
Telephone:- 02920 482000
Fax:- 02920 484199
Tenovus provides support, counselling and information on any aspect of cancer to people affected by cancer.
Bowel Cancer UK
http://www.bowelcanceruk.org.uk
7 Rickett Street
London SW6 1RU
Telephone:- 0207 3819711
CCC aims to educate and disseminate information to the public and healthcare professionals, fund pioneering research and campaign for improved quality treatments and colectoral services in this country.
Colchester GAY switchboard
Lesbian & Gay Anglia
http://www.gayessex.org.uk
The Outhouse
19 East Hill
Colchester
CO1 2QX
Helplines: 01206 869191 mon-fri 7-10pm
08451 232388 mon-fri 7.30-10pm
For everything lesbian, gay, bisexual & transgendered across East Anglia.
Sexual Health Line
http://www.patient.co.uk/showdoc/26738838
Helpline:- 0800 567123 (24 hours)
Offers free, confidential advice, information and support.
National Aids Manual & The British HIV Association
http://www.aidsmap.com
Lincoln House
1 Brixton Road
London SW9 6DE
Tel: 02078 400 050
Fax: 02077 355351
info@nam.org.uk
NEW! aidsmap resources on the global HIV/AIDS epidemic.
Suitable for people with HIV, community organisations and professionals.
Terrence Higgins Trust
http://www.tht.org.uk
314-320 Gray's Inn Road
London WC1X 8DP
Telephone:- 02078 121 600
Fax:- 02078 121 601
info@tht.org.uk
Provides information, advice and help to all those concerned about AIDS and HIV infection. Practical help includes 'buddies' for people with AIDS in the London area: welfare, housing and legal advice: counselling: support groups.
Huntingdons Disease Association
http://www.hda.org.uk/
Down Stream Building
1 London Bridge
London SE1 9BG
National Telephone:- 0207 0221950
Fax:- 0207 0221953
info@hda.org.uk
Leukaemia Research Fund
www.beatbloodcancers.org
43 Great Ormond Street
London WC1N 3JJ
Telephone:- 02074 053139
Fax:- 0207 2421448
info@lrf.org.uk
Produces patient information booklets
Leukaemia Society
http://www.leukaemiacare.org.uk
National Telephone:- 01905 755977
Careline:- 0800 169 6680
Fax:- 01905 755166
The Roy Castle Lung Cancer Foundation
http://www.roycastle.org/
200 London Road
Liverpool
Merseyside L3 9TA
Tel: 0871 220 5426
Fax: 0871 220 5427
This is the only charity in the world wholly dedicated to defeating lung cancer, the biggest cancer killer in the world.
Mesothelioma Information Service
http://www.mesothelioma-cancer-support.com/about-mesothelioma.htm
Excellent free information on mesothelioma treatments, options and alternatives.
Motor Neurone Disease Association
http://www.mndassociation.org
PO Box 246
Northampton NN1 2PR
Helpline:- 08457 626262
Telephone:- 01604 250505
Fax:- 01604 624726 / 638289
enquiries@mndassociation.org
Advice and information for people with MND, their families and professionals through national office and Regional Care Advisers.
Multiple Sclerosis Society
http://www.mssociety.org.uk
MS National Centre
372 Edgware Road
London NW2 6ND
Tel: 02084 380 700
Fax: 02084 380701
OVACOME
http://www.ovacome.org.uk
First Floor, Butler House
177-178 Tottenham Court Road
London W1T 7NY
Telephone:- 02072 996 654 Monday - Friday 9am - 4pm
Fax: 02076 314 674
Helpline: 0845 3710 554
ovacome@ovacome.org.uk
Ovacome is a UK-wide support group for all those concerned with ovarian cancer, involving sufferers, friends, carers and health professionals.
Parkinsons Disease Society
http://www.parkinsons.org.uk
PDS National Office
215 Vauxhall Bridge Road
London SW1V 1EJ
Telephone:- 020 79318080
Helpline:- 0808 8000303
Fax: 0207 233 9908 / 0207 963 9360
enquiries@parkinsons.org.uk
Provides information and support
Prostate Cancer Charity
http://www.prostate-cancer.org.uk
Telephone:- 020 82227622
Helpline:- 08000 748383
Fax:- 0208 2227639
info@prostate-cancer.org.uk
Charity which aims to improve care and welfare of people whose lives are affected by prostate cancer. This includes a nationwide support and information service.
Prostate Cancer Support Association
http://www.prostatecancersupport.co.uk/
BMBOX 9434
London WC1N 3XX
Helpline:- 0845 6010766 (9.00am - 7.00pm local call rate)
helpline@prostate cancersupport.info
National support group for men with prostate cancer. Offers free and confidential help, support and information through national, regional and local self help groups
Information re:testicular cancer
http://www.orchid-cancer.org.uk/
Orchid
St Bartholomew's Hospital
London EC1A 7BE
Penny Brohn Cancer Care
http://www.pennybrohncancercare.org
Chapel Pill Lane
Pill
Bristol BS20 0HH
Helpline:- 0845 1232310
helpline@pennybrohn.org
Penny Brohn Cancer Care (formerly the Bristol Cancer Help Centre) is a national charity and provides complementary care to people affected by cancer.
Complementary Cancer Care Programme
http://www.uclh.nhs.uk/GPs+healthcare+professionals/Clinical+services/Homeopathy+(Royal+London+Homoeopathic+Hospital)/Homeopathy+-+Complementary+Cancer+Care+Programme
Royal London Homeopathic Hospital
Great Ormond Street
London WC1N 3HR
Telephone:- 0207 3918888
Fax:- 0207 3918869
Programme of homeopathy, acupuncture, iscador, aromatherapy massage, reflexology, shiatsu, autogenic training, reiki and relaxation to support well-being and quality of life used in conjunction with conventional cancer treatments. Referrals for outpatient or day care via a patient's GP or hospital doctor.
Crossroads Care Attendant Scheme
http://www.crossroads.org.uk/index.php?mid=8&sid=45&pgid=142&id=273
Crossroads Association
10 Regent Place
Rugby
Warwickshire
CU21 2PN
Tel: 0845 54500350
Fax: 0845 4506556
Provides attendant support to carers looking after people within their own homes. Local contacts available.
Carers' Website
http://www.direct.gov.uk/en/CaringForSomeone/index.htm
Has been launched by the Department of Health. General information of interest to carers with useful links and the text of the government's Carers' Charter
Carers National Association
http://www.carersuk.org/Home
Carers UK
32-36 Loman Street
London SE1 0EE
Telephone:- 02079 228 000
Fax:- 02079 228001
Helpline:- 0808 8087777 (Mon.-Fri. 10.00-12.00 & 14.00-16.00)
info@carersuk.org
Encourages carers to recognise their own needs, and provides support. Information team for professionals as well as a Carers Advice and Information Team.
Essex County Council Adult Social Care
http://www.colchester.gov.uk/a-z.asp?letter=A
Telephone:- 0845 6037630
St. Helena Hospice Carers Group
Barncroft Close
Highwoods
Colchester CO4 9JU
Telephone:- 01206 845566
Fax:- 01206 842445
North East Essex Carers Support
http://www.carersten.freeserve.co.uk
Telephone:- 01255 474410
Support for Carers including advice (benefits etc.), sitting service, respite care.
British Red Cross
http://www.redcross.org.uk
UK Office
44 Moorfields
London EC2Y 9AL
National Telephone:- 0844 871 1111
Fax: 0207 562 2000
information@redcross.org.uk
Medical loan service - wheelchairs, nursing aids, commodes, bed cradles, raised toilet seats, etc. Escorts and ambulance duties. The Red Cross has depots in most areas which are listed in the phone book.
Volunteer Centre, Tendring
http://www.volunteercentretendring.org.uk
Imperial House
Rosemary Road
Clacton on Sea CO15 1NZ
Telephone:- 01255 427888
volb@tendring291.fsnet.co.uk
Community information database. Transport service
Family Support, Clacton
http://www.clacton-on-sea.net/Organisations/family_support_clacton.htm
Hurlingham Chambers
61 Station Road
Clacton on Sea
CO15 1SD
Telephone:- 01255 432132
Fax:- 01255 430960
Colchester Care Network
http://beehive.thisisessex.co.uk/default.asp?WCI=SiteHome&ID=513
Duty Officer:- 01206 792777
Provides practical help to individuals in the Colchester area e.g visiting, transport, shopping, collecting prescriptions, simple household tasks.
Colchester Community Voluntary Services
http://www.ccvs.org
Winsley's House
High Street
Colchester CO1 1UG
Telephone:- 01206 505250
Fax:- 01206 500367
information@ccvs.org
Hold a database of information on local social, welfare and leisure services.
Provides advice, information and support to carers, also day care facilities for people with some form of physical disability.
Shared Care
http://www.sharedcarenetwork.org.uk
Telephone:- 01179415361
Fax:- 01179415362
Shared Care is a respite and friendship scheme for children with disabilities. The children live at home with parents and are supported by carers who can offer them regular short breaks either full or part of day.
Tendring Community Voluntary Services
http://www.cvstendring.org.uk/
TCVS
Imperial House
Rosemary Road
Clacton-on-sea
Essex CO15 1NZ
Telephone:- 01255 425 692
Fax: 01255 425126
Information available on voluntary, charity and statutory organisations in the Tendring area
Child Death Helpline
http://www.childdeathhelpline.org.uk
York House
37 Queen Square
London WC1N 3BH
Telephone Helpline:- 0800 282986
Telephone:- 02078 138416
Fax:- 0207 8138516
contact@childdeathhelpline.org.uk
Staffed by bereaved parents, it is a confidential helpline for anyone affected by the death of a child. The death may be by any cause, and the child may be of any age, from stillborn to adult.
Colchester Counselling & Psychotherapy Centre
http://www.ccandpc.co.uk
3rd Floor
Shaftsbury House
Culver Street East
Colchester
CO1 1LF
Telephone:- 01206 561606
information@ccandpc.co.uk
Counselling for those bereaved and those facing bereavement. Fees are flexible and are based on ability to pay.
Compassionate Friends
http://www.tcf.org.uk
53 North Street
Bristol BS3 1EN
National Telephone:- 0845 1203785
Helpline: 0845 1232304
info@tcf.org.uk
Fax: 0845 1203786
Supports and befriends bereaved parents by group meetings, visits, correspondence, phone calls.
CRUSE - Bereavement Care
http://www.crusebereavementcare.org.uk/
National Cruse Day by Day support line:- 08444 779400
Young person's helpline: 0808 8081677
info@rd4u.org.uk
Local:- Colchester Branch - 01206 363008
Colchester Cruse
c/o Colchester Cornerstone
5-7 Sir Isaacs Walk
Colchester CO1 1AQ
helpline@cruse.org.uk
If you are distressed by your bereavement and want to talk to someone now, you can ring the above, or write to the national Cruse email support.
Bereavement by Suicide
http://www.uk-sobs.org.uk
The Flamsteed Centre
Albert Street
Ilkeston
Derbyshire DE7 5GU
Helpline:-0844 561 6855
Telephone:- 0115 944 1117
sobs.admin@care4free.net
SOBS is a self-help organisation which offers emotional and practical support in the following ways: telephone contacts; bereavement packs; group meetings (in some locations); conferences; residential events; information relating to practical issues and problems; one-to-one meetings and home visits (in some areas).
Stillbirth and Neonatal Death Society (SANDS)
http://www.uk-sands.org/
28 Portland Place
London W1B 1LY
National Telephone:- 0207 4367940
Helpline:- 0207 4365881
Fax: 02074 363 715
helpline@uk-sands.org
Supports bereaved parents who lose a baby through stillbirth or just after birth.
Hospice Information Service
http://www.helpthehospices.org.uk
St. Christopher's Hospice
51 Lawrie Park Road
London SE26 6DZ
Telephone:- 0870 903 3903 /02075 208 232
OR
Help The Hospices
Hospice House
34-44 Britannia Street
London WC1X 9JG
A world-wide resource and link which encourages sharing of information and experience amongst those involved in palliative care. Collects, collates and disseminates statistical and general information for health professionals and helps members of the public to identify and access appropriate resources for the terminally ill.
St. Helena Hospice is not responsible for the content of external Web sites.